Farewell Cecil We Will Miss You

I just got off the phone with Cecil who has been Kayden's transplant nurse for the past year. She just told me that she is moving and her last day will be Monday. I am so sad. She is my life line with Kayden. I know that it isn't really that big of a deal, but to me it is. When you have a child that has had a transplant your transplant nurse is a major part of your life. It is hard to explain how and why you have such a bond with them. She gave me her direct number so that I could get a hold of her at anytime and she listens to what I have to say when it comes to Kayden's care. I really appreciate that about her. She makes it easy to talk to about Kayden's problems and really listens to what I have to say. Because of this she has helped me become the biggest advocate for my son and has allowed me to voice my concern and my point of view. I am like this with all of his doctors now. When we are in any ER I am the one telling the doctors and nurses what needs to be done and then I make sure I call Cecil and let her know what things I have arranged to have done and then she will tell me if there is anything further that needs to be done.

The main reason I called her today was because Kayden's ear is draining AGAIN! Last month he had an ear infection that went on for a month. We went through 2 rounds of antibiotics and then started on some ear drops. The drops seemed to help clear it up the last time. When we were at transplant clinic last month he still had fluid behind his ear, but it wasn't draining or infected. Sunday his ear started draining really bad again. *****warning those with weak stomachs do not want to keep reading***** Now his ear has this whitish, greenish, mucousy stuff draining out of it. It is really slimy, like snot, and it is coming out of his ear. We don't know exactly what is going on so my favorite nurse in the world said to take him to a doctor and they may need to culture it, see if he needs antibiotics, and then take him to see an ENT.