Monday, October 12, 2009

Once Again, What is so special about tomorrow


Tomorrow is this little guys birthday. And you can let the sweetness and cuteness capture your heart because his is not a facade.

Kayden was my only one out of all my kids that I actually went into labor with. His actual due date was on November 5 but Kayden made his debut on October 13. At first he wouldn't cry, but after sticking a tube down his nose to suck out is lungs he decided to cry. The ironic thing about his due date being on November 5 is that was actually the day we were given a diagnosis of hypoplastic kidneys.

Kayden is such a sweet heart. He has been through so much in his short life and he enjoys life to the fullest. We have had an NG tube, a G-tube, GJ tube, growth hormone injections, epogen injections, 24 hour feeds from the time he was 9 months old until just before his 2nd birthday, a hiatal hernia, 9 different medications at one time, a Nissen Fundoplication, mastoiditis, and a Kidney transplant all in his little 5 years of life.

Kayden still struggles with eating. His favorite thing to eat is cinnamon sugar toast, eggos, fried shrimp, eggs, strawberry milk, strogonoff, McDonalds hamburgers and the crust off of pizza. He is leaps and bounds above where he was just three years ago. He still uses his tubie at night for calories that he doesn't get during the day and for his medications that he takes.

Kayden has the biggest heart and he is the sweetest kid. He also has the softest heart and his feelings get hurt often. He is a mommy's boy and I admit that I tend to give into him more than I should. He amazes me everyday at what he can do. There are times when I don't think he can do something and he proves me wrong. Lately he has become a master at the Star Wars Lego game on the Wii. He will play that thing for hours and he figures out how to get past a level and move on. There are a lot of things that he would not be doing if it was left up to me because I simply would be more of a hinderance to him than anything. I truly look at him running and playing and simply start to cry because I NEVER thought that he would do that a mere 3 years ago. I watch him ride his bike in pure amazement at how much he has overcome to get there. For the first two years of his life it literally caused him pain to put weight on his little legs and when he crawled he had to make sure that he didn't pull his tubie out by kneeling on the tube and he could only go so far until the tube was stretched to the max.

He loves Star Wars, GI Joe, Transformers, Toy Story and Spongebob. He loves to play with Koy and those two have a love hate relationship.

And he says and does the funniest things once he gets past his shyness.

He is my hero for all that he has triumphed through. When I have to have my blood drawn I think of him and if he can do it without crying so can I. When I have to have a shot I think of him and what he has been through. I look at him and see this little 5 pound baby laying in the hospital bed at Primary Children's in kidney failure just wanting to get better and wanting his mom to make things better but I couldn't do anything for him but feed him, love him, and administer to his needs for 2 years until that wonderful day when someone willingly gave my baby something I couldn't. The chance to turn 3, 4, and now 5. How grateful I am to that anonymous family. They gave me the chance to have my little boy grow up to be a big strong little boy.

Please, if you aren't an organ donor, sign up today so that there will be other little kiddos like Kayden who can have a second chance at life.

2 comments:

Nicky said...

being a donor really scared me, but as soon as I saw that little boy needing a kidney and seeing what our family has gone through, I signed up right away. I see that smile on his face, or hear his laugh.. How can you not just smile. He is growing up so much! I look back at the past 3 years, and it is amazing at what he has been able to do since that transplant.

Lisita said...

What an amazing story. He'll grow up to do great things in this world! You are all warriors!